Apply for our rare conditions focus group

Please complete this expression of interest form for our focus group for families on either Tuesday 19 or Wednesday 20 July.

We’re asking you to complete a few questions below. We only have 10 spaces, and we would like to consult with parents with a range of experiences and backgrounds.

Please remember to press the SUBMIT button at the end.

We will confirm places on Friday 15 July. Thank you for your time.

We will look after your details in accordance with our data protection policy. Please note that we will be recording the session, but this will only be used to help us take notes and will be deleted after use. The views you share with us will be used anonymously to help us improve our services.